Wednesday, September 30, 2009

Social Networking: Do You Hear What I Hear?

Thinking about engaging in social media/social networking/Web 2.0 but don't know where to start? The "Listen, Learn, Adapt" method is a great approach. Using this foundation you will be able to approach any social network with reduced fear and a gained understanding as you will better understand how social networking can be used as a tool for you to spread the word about your affiliate. You will find what others are saying about your organization and be able to cultivate evangelicals for the UCP cause. They, in turn, will spread the word about your good work and exponentially spread your message to their friends.

Naturally, there is resistence to anything that is new, until we can percieve a tool will benefit our daily lives. Using search engines, the internet and e-mail or even learning how to use office documents such as a word processor program were all once new experiences and we managed to get beyond the fear and realize their utility in our lives. In the modern era, it is hard to believe how our daily lives would function without access to the internet.

The first step, as a best practice, is to start slow by listening and learning. Have you ever performed a google, yahoo, MSN or bing search for your organization's, executive director's name or board member's name? Then you have engaged in listening. You are finding out what others are saying about your organization or even about you. You can do the same thing about social networks. You can search for tips on how to start a social networking profile or the explanations of each social network.

After you have established a listening behavior, try joining one social network, personally or professionally. Get to know it, how it works, how to do basic tasks, such as adding friends and sending messages.

The next step in this cycle is to adapt. When you have these simple tasks mastered, look around for ways to better represent your organization, such as using Facebook by adding the Causes application or fan page application and starting a cause or fan page for your affiliate, if you haven't started one already or if one doesn't already exist. Then begin recruiting your friends to join and they in turn will recruit their friends. Post an update once per week or day letting everyone know about any recent news or events happening at your affiliate. These updates can be short such as, "UCP of xxx is holding a golf tournament, visit... for more information."

All listening doesn't have to happen online, finding or hiring a college intern is a great way to find out more about social networking platforms and how to use them, becuase they are likely already involved on a social network. Through "reverse mentoring," this person can help explain how things work and how you can better manage your presence on the social network. Of course, you can also find a colleague if you are uncomfortable with this idea that is knowledgeable in this area and they can assist you in learning more about social networking.

The experience of the national office is that many people like to ask questions and are seeking information when interacting with our profiles. This is a part of engaging in the conversation. Building relationships is a great benefit for UCP because these relationships will likely last a lifetime.

There might be hesitation that someone will post a negative comment and UCP national office staff have experienced that this is not the case. Posts such as these are rare and quickly removed by UCP national office staff and the national office is able to actively control its messaging on all profiles. Monitoring can be as little as five to ten minutes each day and includes responding to comments and questions.

Some managers would like to approve all interactions before they take place in responding to questions and commentary on social networks. A best practice is to allow for flexibility in the ability to respond to these inquiries. The key is trusting the person on the front lines, responsible for responding to these inquiries, becuase it is important to have enough flexibility and discretion to respond in a timely manner. An unresponsive organization on social networks can also become a negative thing for the public perception of your organization.

For more about listening, please view the slideshows and videos below:

The video immediately below was produced by the Case Foundation with Holly Ross, Executive Director of the Nonprofit Technology Network (NTEN) as a part of their series, Gearing Up for Giving:

For more information on how to get started, visit AffNet and click on the "Social Networking" link in the lower left quadrant upon logging in or contact Will Hull at (202) 973-7106 or Patrick Tutwiler at (202) 973-7141.

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Information & Referral:
My Child Wihtout Limits Gaining Speed

Last week, we publicly launched the My Child Without Limits Web site. So far, the feedback has been great across the World Wide Web.

We continue to receive positive comments on the My Child Without Limits Facebook Fan Page and we are excited that My Child Without Limits suporters have are tweeting on Twitter. People seem to really like the useful Forms that can be downloaded from the Web site.

The About.com Special Needs Channel and the Parenting Intelligence Report both named My Child Without Limits as "Site of the Day" last week.

Autism Speaks tweeted and posted announcements on their Facebook fan page as well.

The word is spreading but we need your help to keep the momentum going. Spread the information in your community using the tools in the Toolkit (located on Affnet available only to United Cerebral Palsy affiliates). The Toolkit includes sample press releases, media talking points, audio/video PSA's, fact sheets, brochures and more.

Please take a moment and view slides from the webinar that took place on September 21, 2009 prior to the official launch of My Child Without Limits:

For more information, please contact Lara Terrell at (202) 973-7105.

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Annoucements - Week of September 30, 2009

Affiliate News

Funding Opportunities

Position Opportunities

Other News

Fundraising

Social Networking/Web 2.0

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Monday, September 28, 2009

Capitol Insider - Week of September 28, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Friday, September 25, 2009

Volunteers Team Up
to Spend Community Care Day
with Participants from UCP of Central Ohio

Westgate Park was the place to be on September 15. Volunteers from various Central Ohio organizations took part in United Way of Central Ohio's 18th annual Community Care Day, spending the day at the park with participants from UCP of Central Ohio. The UCP affiliate was honored to welcome volunteers from AEP and Chase.

Community Care Day was filled with fun indoor and outdoor activities. In the morning, each volunteer was paired with a "buddy" from the UCP affiliate. The pair would spend the day getting to know one another and doing many different activities like singing and dancing, fishing, playing the game of Cornhole/Corn Toss and always popular Bingo. UCP of Central Ohio's participants were thrilled to see familiar faces of past volunteers who continue to come back each year, making their visit to UCP of Central Ohio an annual tradition and creating lasting friendships with participants. These experiences allow volunteers to better understand UCP's mission and see the capability of people with disabilities and aging conditions.

Community Care Day is the largest single volunteering event in Central Ohio and truly rewarding for the volunteers, participants and staff at UCP of Central Ohio. The affiliate would like to say thank you to their amazing volunteers and United Way of Central Ohio for making Community Care Day 2009 a huge success.

For more information, please visit the UCP of Central Ohio Web site or contact Heather Dean at (614) 279-0109.

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Wednesday, September 23, 2009

It’s Official:
UCP Announces MyChildWithoutLimits.org,
An Online Resource for Parents of
Young Children with Developmental Delays

United Cerebral Palsy (UCP) today announced the launch of My Child Without Limits (MyChildWithoutLimits.org), UCP's pioneering initiative that provides parents of children with disabilities an online resource with critical information that also connects parents to a vital social network of parents of newly diagnosed children ages 0 to 5.

The first realization that your child is going to face the many challenges and obstacles encountered by those who live with a developmental delay or disability can be a lonely, frightening and confusing time. Many parents who have been assisted by UCP have reported that finding the organization and receiving the information and advice our affiliates provide has been a very significant turning point for them.

My Child Without Limits is a place for parents worried that their child is not developing like other children, to find answers to their questions. It is a place where parents know they are not alone after their child has been diagnosed with a developmental delay or disability. The authoritative site and online community are designed to be resources for families and their caregivers and professionals.

The Web site provides access to accurate, user-friendly and relevant disability-related information, resource guides, and experts on early intervention and family support in three basic areas:

  • Understand – Help families answer the questions: What are Autism Spectrum Disorder, Cerebral Palsy and Down Syndrome?
  • Plan – Provide guidance about where to go for early intervention services, treatments and therapies, assistive technologies, and expert direction and advice.
  • Act – Direct parents and caregivers to where they can explore issues surrounding disability awareness, advocacy and lifespan planning.

The community section of My Child Without Limits also offers a venue for parents to communicate with each other, ask questions of professionals and service providers, and receive support through the critical period of initial diagnosis.

"I can't think of a better way to reach parents of children with disabilities who are so desperately seeking credible information they can trust," said Stephen Bennett, President & CEO, United Cerebral Palsy, Inc."My Child Without Limits will be the one-stop shop for parents and professionals, and help children with disabilities start achieving a life without limits at an early age."

For more information, please visit www.MyChildWithoutLimits.org.

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Information & Referal:
My Child Without Limits Has Launched

Today, we publicly launched My Child Without Limits, our pioneering initiative that provides parents of children with disabilities an online resource with critical information that also connects parents to a vital social network of parents of newly diagnosed children ages 0 to 5.

Press releases were distributed to media, national disability related organizations and UCP constituents.

What does that mean for your information and referral activities? It means that you may experience an increase in calls from families who found your Affiliate through the My Child Without Limits Web site Resource Locator or the toll-free number. Please make sure you are ready to help these folks find services and support in your area, in addition to the support community. The following posts provide this key information:

On Monday the 21st, the UCP National office conducted an orientation webinar about the site. If you missed it, have no fear, the webinar will be archived on Affnet shortly.

If you have any questions/comments/suggestions about the site please contact Lara Terrell at (202) 776-0406 x7105.

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Annoucements - Week of September 23, 2009

Affiliate News

Other News

Advocacy

Fundraising

Social Networking/Web 2.0

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Monday, September 21, 2009

Capitol Insider - Week of September 21, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Wednesday, September 16, 2009

Disability Advocates Meet at
the White House in Late August

On August 27, as follow-up to the meeting that President Obama had with disability community representatives on July 24, a group of advocates for home- and community-based long-term services and support, met with Nancy-Ann DeParle and other senior staff at the White House to discuss the Community First Choice (CFC) Option.

The disability representatives thanked the President's staff for his strong leadership on enacting comprehensive health reform that will help advance the goals of the Americans with Disabilities Act by eliminating disability-based discrimination in health care coverage and barring pre-existing condition exclusions.

The meeting participants had a frank and productive discussion concerning the possible opportunities and barriers of including a Community First Choice Medicaid State Option (CFC Option) in the final health reform legislation. The CFC Option is an idea that emerged from discussions with Senator Harkin's office and Representative Davis' office as a way to make progress on home- and community-based services and support under Medicaid, in addition to a way to lay the foundation for later enactment of the Community Choice Act. It is a proposal that has support from the cross-disability community, including leaders from United Cerebral Palsy, The Arc of the United States, NCIL, ADAPT, the Consortium for Citizens with Disabilities (CCD), AAPD, the National Coalition of Mental Health Consumer Survivor Organizations, Autistic Self Advocacy Network and Self Advocates Becoming Empowered.

» Learn more about the CFC Option here «

The disability representatives thanked the White House staff for their time and support for expanding choices in long-term services and support, and all agreed to keep the lines of communication open, as health care reform heats up after Congress would return from August recess.

Attending the meeting from the White House were Nancy-Ann DeParle, Director of the White House Office of Health Care Reform; Tina Tchen, Director of the White House Office of Public Engagement; Jeff Crowley, Director of the White House Office on National AIDS Policy, and Senior Advisor on Disability Policy within the Domestic Policy Council; Kareem Dale, Special Assistant to the President for Disability Policy; and Keith Fontenot from the Office of Management and Budget. Mr. Fontenot's responsibilities for OMB include long-term services and supports policy.

Attending the meeting from the disability community were Mike Oxford and Cassie James from ADAPT; Kelly Buckland and Lou Ann Kibbee from the National Council on Independent Living; Marty Ford of The Arc/UCP Disability Policy Collaboration and CCD; Chester Finn of Self Advocates Becoming Empowered; Daniel Fisher of the National Coalition of Mental Health Consumer Survivor Organizations; Ari Ne'eman of the Autistic Self Advocacy Network; Suellen Galbraith of ANCOR; Lee Page of Paralyzed Veterans of America; Andy Imparato of the American Association of People with Disabilities; and Bob Williams, President Clinton's Deputy Assistant Secretary for Disability and Long-term Care Policy, who attended as a private citizen.

For more information, please contact Annie Acosta at (202) 783-2229.

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Information & Referral:
Child Passenger Safety Week

September 12-19 is National Child Passenger Safety Week.

The National Highway Transportation Safety Administration (NHTSA) sponsors National Child Passenger Safety Week each year to remind us of the importance of child passenger safety. We all need to be mindful and buckle up but there are important safety measures to take into account for child passengers.

For children with special needs there are even more considerations that need be taken. Please see the previous "Ask Lara" column on child passenger safety for children with special needs.

Related Resources:

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Information & Referal:
New Microcephaly Guidelines from AAN

A new guideline from the American Academy of Neurology (AAN), developed in full collaboration with the Child Neurology Society, finds that children with microcephaly – children whose head size is smaller than that of 97 percent of children – are at risk for neurologic and cognitive problems and should be screened for them. The guideline is published in the September 15, 2009 issue of Neurology®, the medical journal of the American Academy of Neurology.

Microcephaly is common, affecting more than 25,000 infants in the United States each year. If it is not present at birth, it usually has developed by the time a child is two years old. While microcephaly is not a disease, it is an important sign that may point to other conditions such as epilepsy, cerebral palsy, intellectual disabilities, and eye and ear disorders.

Summaries of the guideline are available online: www.aan.com/guidelines

Additional Resources:

For more information, please contact Lara Terrell at (202) 776-0406 x7105.

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Annoucements - Week of September 16, 2009

Affiliate News

Report/Research

Webinars/Workshops/Conferences

  • Disability Coalition for Health Care Reform: Join members of the Disability Coalition for Health Care Reform, Jason Beloungy of the National Council for Independent Living, Barbara Kornblau, JD, OTR/L chair of Justice for All Action Network Health Care Committee, Liz Savage of The Disability Policy Collaboration between United Cerebral Palsy and The Arc of the United States and others Thursday, September 17, 2009 at 2:00 PM Eastern Daylight Time for a legislative update, a discussion of proposed key elements that impact people with disabilities, and action that the disability community can take to make sure health care reform happens and in a way that increases access and choice for people with disabilities. To RSVP: RSVP@paraquad.org. Include your: Name; Organization; Email and other contact information; If you need real time captioning or other accommodations.
  • Office of Disability Employment Policy, Department of Labor: Federal Employer Winter Webcast Series 2009-2010.
  • College of Direct Support: Side-by-Side Technology: Therap, CDS Training Conference IV in association with Therap Services, joint training conference (Indianapolis, IN, October 20-22nd).
  • National Youth Leadership Network (NYLN): Independent Media 2.0. Using blogs, video and free social media tools (podcasting, twitter, facebook) to revolutionize and remix a powerful disability rights message. Speakers will include: Moya Bailey, Quirky Black Girls founder; Anita Cameron, ADAPT media maker; Cripchick, feminist blogger; Ari Ne'eman and Melanie Yergeau, organizers with the Autistic Self Advocacy Network. (Register for this teleconference September 21st 8:00 PM Eastern).

Film

  • Brain Injury Dialogues: Rick Franklin, a brain injury survivor of 17 years, teams up with friend and documentary maker Lyell Davies to explore what life is like with a brain injury.

Books

  • John Stuart, MSW, featured in the June/July 2009 issue of Ability Magazine has written a book about overcoming disabilities titled Perfect Circles: Redefining Perfection. John has cerebral palsy and draws on much of his life experiences in the book. The book is also about overcoming other types of challenges that we all experience. In Perfect Circles, John challenges each of us to face our own disabilities, what he calls our "imperfections," by rethinking the real meaning of perfect. Learn more about that book at www.readperfectcircles.com/.

Other News

Fundraising News

Social Networking/Web 2.0

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Monday, September 14, 2009

UCP of Greater Houston Partners with
Lutheran Social Services Disaster Response
To Administer Hurricane Ike Relief

It's that time of year again. As we stockpile water, flashlights, batteries and food in preparation for hurricane season, we can't forget those still suffering from last year's storms. The effects of a natural disaster stick around long after the storm blows over, and for many people, life never seem to get back to normal. United Cerebral Palsy of Greater Houston and Lutheran Social Services Disaster Response are working together through a disaster case management program, known as Recovery for Ike Survivors Enterprise (RISE), which helps survivors of Hurricane Ike.

RISE is part of a $24.3 million grant to provide disaster case management services to more than 13,000 survivors of Hurricane Ike, living in 16 Texas counties devastated by the deadly storm. The grants are funded by the U.S. Department of Homeland Security's Federal Emergency Management Agency (FEMA) and administered by the Texas Health and Human Services Commission.

"Often after a disaster like Hurricane Ike, survivors are overwhelmed by all the losses and devastation in their lives – home, vehicles, jobs, personal belongings and even the deaths or injuries of family and friends," said Mark Minick, senior vice president of external relations for Lutheran Social Services. "As a result, they often have trouble figuring out where to even begin the process of rebuilding homes and lives. This program puts 250 caseworkers on the ground in 16 counties over the next year to help them sort out what their needs are and to develop a realistic, achievable recovery plan."

For people with disabilities, many of whom are among our most vulnerable neighbors, the impact of a storm can be catastrophic. United Cerebral Palsy of Greater Houston is proud to have been chosen to partner with Lutheran Services in support of RISE, a result of the organization's success helping everyone with any type of disability to rebuild their life following the storm. If you or someone you know is still suffering from Hurricane Ike, please contact Cindy Wooldridge at (713) 501-7164.

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Follow Up: ESPN E:60
A Story About A Boy
And His Little League Team

Following up, a short while ago, we wrote about a little boy, Tom Ellenson and his little league team. Today we are happy to report back with the full story. Take a look below at the official video from ESPN's E:60 Television broadcast.

What are your thoughts on this story? Post them below by clicking on the comments link at the bottom of this post.

For more information, contact Will Hull at (202) 776-0406 x7106.

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Capitol Insider - Week of September 14, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Friday, September 11, 2009

Ask Lara:
Information on Swine Flu and Children with Disabilities

Q: Are children with cerebral palsy or other developmental disabilities more susceptible to the H1N1 virus (otherwise known as the swine flu)?

A: Children with chronic health problems such as asthma, diabetes, heart disease, metabolic conditions, neurologic and neuromuscular disorders, and pregnant women are at higher risk of having complications from flu. A recent CDC report found that of of the 36 children who died from swine flu from April to August 2009, 24 (67%) had one or more high-risk medical conditions. Twenty-two (92%) of the 24 children with high-risk medical conditions had neurodevelopmental conditions e.g. developmental delay or cerebral palsy. "For people who do have an underlying condition, it's important to be seen promptly if you get a fever. That could make the difference between being severely ill and recovering well," said Thomas Frieden, director of the CDC.

Additional Resources:

Related Information:

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Thursday, September 10, 2009

A UCP of Greater Houston Collaboration:
Children’s Chapters

United Cerebral Palsy of Greater Houston is honored to announce that we are now working with locally based online bookstore -
www.ChildrensChapters.com.

Owner Lauri Rosen Sack's love for children's books originally took form ten years ago as a local magical children's bookstore. The innovation and possibilities of the Internet, paired with sharing her knowledge of wonderful children's books, Lauri switched her energies into an on-line children's book store and concierge service, with a personal touch. What sets Children's Chapters apart from other online bookstores is that each book on the site is researched, read and approved before posting.

United Cerebral Palsy (UCP) of Greater Houston and Lauri Rosen Sack have paired up to create the first "go to" service for all books and resources related to disabilities and children. A section targeted to adults is currently being researched and will be on the Web site as they are selected.

Whether you are a child, parent or educator,
www.SpecialChildrensChapters.com is an amazing resource. Children and teens dealing with topics ranging from neurological, cognitive, behavioral, speech/language and auditory/visual issues, to life issues such as death, family issues like divorce, substance abuse like alcoholism, adoption and more, will find a wide array of books to suit their needs. If you are unable to find what you need, users should feel free to send Lauri an e-mail. She is there to assist you. Look for the "Special Needs and All I'm Feeling" link on either Web site. Shipping is free, and an educator discount is also offered.

UCP of Greater Houston is proud to be working with such a socially responsible company and honored to be receiving a portion of the proceeds from book sales.

Do you have a burgeoning partnership similar to UCP of Greater Houston at your affiliate? Please post a comment and let's start the conversation about your experience and share it with other affiliates who read UCPeople.

For more information, please contact Kelly Klein at (713) 838-9050 x305.

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Wednesday, September 9, 2009

Guest Post: A Life Without Limits
Because of UCP of New York City

By Christine Rudd,
UCP supporter and past consumer of UCP of New York City services.

I have never thought of myself as different. That's just not the way my family has ever treated me or how I see myself. So, when I was little and couldn't walk because of my Cerebral Palsy (CP) and wanted to play with one of my toys, I remember being told that I could crawl and get it if I wanted it, because there was nothing wrong with me. I never saw that as mean or a bad thing, and I think those words are what continue to push me today.

I started my interaction with United Cerebral Palsy (UCP) at the UCP Center in Brooklyn, New York when I was around two-years-old. One of my earliest memories of that time is being in my classroom singing and playing with a parachute with the rest of my classmates. I also remember a field trip we took to Pennsylvania and having a great time with everyone.

During this time, I also remember not being able to walk at all. I was determined that someday I would walk and not have to rely on other people to push me in my wheelchair. My mom was told that due to my CP, I would never walk or lead a normal life. Later on, when we were packing to move to Florida, I remember finding medical documentation stating that my "young mother was delusional that her daughter would have a normal life, when it was obvious that I wouldn't."

Says my mom, Nancy Arenas,

"The UCP center on Lawrence Avenue in Brooklyn that Christinne attended had a great staff. The counselors, teachers even the bus drivers were great, knowledgeable, supportive, courteous and helpful. They helped us through some tough decisions with regards to Christinne and her development. They were there to advocate for us when we were confronted with doctors who wanted to insensitively go in and operate without looking at the big picture. The UCP staff was supportive as I stood my ground on believing that I knew best for my daughter and given the options, I could make the right decision for my daughter, Christinne. I am always thankful that we found UCP and for what they did for us."

After many appointments and with the help and direction of the advocates at my UCP Center, I underwent various operations and took my first step with assistance at about six-years-old.

In school, I was "mainstreamed" and included in the classroom for the first time, when I enrolled in 3rd grade, full time. At this point, I was using a wheelchair because, although I was walking with assistance and at home, I couldn't get on the bus in the morning by myself. It was an experience for me, because I found myself explaining my disability to the other kids.

By the 7th grade, we moved to Staten Island, New York. This was also interesting, because I think I was the first student with a disability the school ever had, or at least that is how I felt. All the kids in school would stare at me and never say a word to me. It was like I was an alien or something. I really couldn't understand this because it'd always been pretty easy for me to make friends. By this time, I was walking with only the use of a cane as I do today.

New Kids on the Block PhotoThen UCP came calling again, to answer one of my desires. The New Kids on the Block were going perform at the UCP Telethon in 1990, . I asked my mom to take me to New York City where the telethon was being held. The first night we were there watching the New Kids on the Block, I met this girl, Jenny and her cousin. We were both big fans of the group and loved every minute of the performance.

After the telethon, Jenny and I spent the following years as pen pals, and 19 years later, she was the Maid of Honor at my wedding.

My Mom and I then met Ben Vereen. We told him what a huge fan of the New Kids I was and he was determined to get me to meet them. He was so nice and took care of my Mom and me, getting my Mom coffee and making sure we were okay. Then, he got me back stage and I met Donnie Wahlberg and Joe McIntyre. They were so nice. Donnie said something about getting me on stage with the New Kids, but nothing was made definite.

When I went back to where you could watch the Telethon, I ended up in a group of people that were sitting on the edge of the stage. The next thing I remember, the New Kids were on stage singing, and Donnie came over to me and sang "Be My Girl" on National TV!

When I went back to school that Monday, everyone wanted to talk to me and be my friend. The school newspaper even wrote an article about me. Not only do I love New Kids on the Block for the music and entertainment they give to their fans, but also for their belief in UCP. They believe in people with CP and know that we aren't really any different and shouldn't be treated differently than anyone else.

After High School, I moved to Florida with my mom. I had decided around this time that I wanted to work with people with disabilities to give them the voice that they so desperately needed and rarely had.

Christine Rudd with pen pal and Maid of HonorBecause of the belief in me and the support I received from UCP, I was able to become successful on my own merits. I hold a Bachelor's in Legal Studies and a Master's in Criminal Justice, both from the University of Central Florida. I currently work at the Center for Independent Living (CIL) outside of Orlando as the Advocate and work in the community on different issues. I met my husband at CIL, and we recently bought our first house.

In the future, I am looking to expand my advocacy role in the community, write a book and possibly become a speaker. My ultimate goal is to help educate people so that they know that people with disabilities aren't so different and that we deserve to have the most fulfilling life as we can despite our obstacles, and to help people with disabilities reach that goal.

I thank UCP of New York City and the entire affiliate network in my heart every day, because without the help they provided for my mom and me, I wouldn't be able to have the beautiful and fulfilling life that I have, and I wouldn't have the opportunity to be a role model to others.

For more information, contact Will Hull at (202) 776-0406 x7106.

Related Post:

Christine Rudd as a Child, UCP of New York City ConsumerChristine Rudd as a Child, UCP of New York City ConsumerChristine Rudd as a Child, UCP of New York City ConsumerChristine Rudd as a Child, UCP of New York City ConsumerChristine Rudd with her Mother, Nancy ArenasChristine Rudd with pen pal for 19 years and Maid of Honor, JennyChristine Rudd with her new husbandChristine Rudd with her new husbandChristine Rudd with Friends

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Annoucements - Week of September 9, 2009

Affiliate News

Meetings/Workshop

Other News

Web 2.0/Social Networking

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Tuesday, September 8, 2009

My Child Without Limits
Teams Up With Including Samuel:
A Film Documentary About Inclusion
For People With Disabilities

Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Including Samuel centers on the efforts of Habib and his family to include 7 year-old Samuel in all facets of school and community. The film also features four other families with varied inclusion experiences, plus interviews with dozens of teachers, young people, parents and disability rights experts.

Including Samuel
is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion. Says Habib, "Four years ago, I sat at my son Samuel's hospital bedside at Dartmouth Hitchcock Medical Center as he lay in a medically-induced coma. He was four years old and had developed pneumonia from complications following surgery. Samuel's neurologist, Dr. James Filiano, encouraged me to be a photojournalist in the midst of my fear." The result is this documentary that accounts for Habib's experiences with his son.

Including Samuel comes to public television in September and October (Disability Awareness Month) with support from the National Inclusion Project and CVS Caremark All Kids Can.

UCP has partnered with the Including Samuel project as part of the public launch of the My Child Without Limits Web site, an authoritative early intervention information resource and online community for families of young children ages 0-5 with developmental delays or disabilities. Full inclusion in society for people with disabilities is the mission of United Cerebral Palsy and underpins the programs, services and supports affiliates offer children and adults. "Early intervention information can help a family make appropriate decisions at a crucial time when the greatest number of developmental milestones occur," said Lara Terrell, Information and Referral Coordinator for United Cerebral Palsy. "We know any delay in a child's earliest years. may impact the quality of life as they grow older."

Each child deserves the best start in life to realize their potential and equal opportunity to live a Life without Limits. My Child Without Limits in partnership with the Including Samuel project invite you to visit the Including Samuel Web site for a listing of times the film will show on public television and to visit the My Child Without Limits Web site to learn more and to get involved in the "Community" in sharing your personal experience with others, asking questions or simply being there for one another.

Including Samuel has been featured on NPR's All Things Considered, Good Morning America NOW and in the Washington Post and the Boston Globe. Exceptional Parent magazine said "Including Samuel is a must see film." The film won the Positive Images in Media award from TASH, an international group committed to the full inclusion of people with disabilities. The film was also screened at the Sprout Film Festival at the Metropolitan Museum of Art (NYC) and named "Best Documentary" at the Somewhat North of Boston Film Festival. The global aid group Mercy Corps is using the film to support the Iraqi disability rights movement.

Additionally, Professor Michael F. Giangreco of the University of Vermont Center on Disability and Community Inclusion said, "This film will keep inclusion and social justice issues for people with disabilities in the forefront of people's minds, and it will raise awareness about inclusive education and inspire action."

Please view the trailer for Including Samuel below:

For more information, visit the Including Samuel Web site or contact Dan Habib at (603) 228-2084.

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Capitol Insider - Week of September 8, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Friday, September 4, 2009

Attention I&R Specialists:
My Child Without Limits Will Launch Soon!

We will formally announce the My Child Without Limits Web site later this month. The Resource Locator will help parents and caregivers of young children with suspected or confirmed developmental delays and/or disabilities find their Affiliate. Please make sure you are ready to help them find the early intervention information, family support and other services they need in your community.

Join us for a virtual orientation to the Web site on Monday, September 21st at 2 PM ET. We will review site structure and content, resources available, social networking community and future site additions. Please watch your email for more details.

If you have any questions please contact Lara Terrell at lterrell@ucp.org or 202-973-7105.

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Wednesday, September 2, 2009

UCP of Greater Birmingham Awarded Grant
from Children’s Trust Fund of Alabama
for Parenting Skills Project

United Cerebral Palsy (UCP) of Greater Birmingham has been awarded grant funds from the Children's Trust Fund of Alabama for a Parenting Skills Project. This grant is geared to prevent child abuse and neglect, particularly in children with disabilities. Throughout the course of this grant year, over 600 children and families will receive training and support with the ultimate goal of establishing support systems in the community and to decrease the likelihood of abuse and neglect in these families.

The program will be coordinated by a trained counselor specializing in special needs populations and will be implemented by qualified professional staff in Jefferson, Shelby, Blount, St. Clair, Etowah and DeKalb counties.

Children's Trust Fund grants are partially funded through the sale of specialty license plates, of which approximately 92% of the purchase price goes directly to fund community-based prevention programs in Alabama. These tags are available at every County Probate office and are tax-deductible. They can be personalized with any combination of six letters or numerals at no additional charge.

"United Cerebral Palsy of Greater Birmingham is pleased to be able to partner with Children's Trust Fund to provide this valuable training to families in Alabama," says Dr. Gary Edwards, Executive Director of UCP. "As a result of this grant we will be able to provide needed support to families of children with and without disabilities."

For more information, visit the UCP of Greater Birmingham Web site or contact Jennifer Ellison at (205) 944-3906 or Amy Lindsey at (205) 944-3978.

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Information & Referral:
September is National Preparedness Month

September 1st marked the beginning of the sixth annual National Preparedness Month—a month where we focus on becoming better prepared for and more resilient in the face of emergencies of all kinds.

National Preparedness Month is about building a culture of personal preparedness and shared responsibility across our country. "Every American is a critical member of our nation's emergency response team," said FEMA Administrator W. Craig Fugate. "By taking a few simple steps now, each of us can make sure we are better prepared for the next emergency or disaster."

For more information on the Ready Campaign and National Preparedness Month, visit www.ready.gov or www.listo.gov—or call 1-800-BE-READY or 1-888-SE-LISTO for more emergency preparedness information.

Review last year's UCPeople article on National Preparedness Month to find resources for emergency preparedness and people with disabilities.

For more information, contact Lara Terrell at (202) 776-0406 x7105.

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Annoucements - Week of September 2, 2009

Affiliate News

Survey

Webinars

  • Alliance for Full Participation: AFP State Teams webinar to update teams on the latest activities of the fundraising, technology and marketing committees and explain the AFP Program framework and goals in greater detail (September 18, 2009 12:00 PM - 1:00 PM EDT).

Other News

Web 2.0/Social Networking

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Tuesday, September 1, 2009

2010 Exploring Spasticity Contest Deadline: Today

Today is the final day to enter the 2009-2010 Exploring Spasticity Calendar Contest. Creatively express your personal experience with spasticity. Written entries (750 words or less) can take the form of an essay, short story, or poem. Visual forms of expression, such as drawings, painting, photography, and other media, are also welcome (maximum size is 18" X 24"). Please note that entries will not be returned.

Twelve winning entries will be published in the 2009 Exploring Spasticity calendar. If your entry is selected, you will also receive a $250 cash prize, and a contribution will be made in your name to the local chapter or affiliate of your favorite Exploring Spasticity program partner. You must be a registered member of Exploring Spasticity to be eligible (please register here). Entries must be postmarked no later than September 1, 2009. Visit http://www.exploringspasticity.com/ for more details, or to complete an online entry form.

Mailing address
(if not completed online and postmarked by September 1, 2009):
Exploring Spasticity
Medtronic, Inc.
710 Medtronic Parkway
Minneapolis, MN 55432-5604

Exploring Spasticity, created and sponsored by Medtronic, Inc., is an educational program designed for people affected by spasticity. By becoming a member of the community, individuals can learn about spasticity, receive information tailored to specific conditions or find a local physician.

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