Friday, October 30, 2009

President Obama Signs Hate Crimes Legislation

Recently, UCPeople reported on the status of hate crimes legislation. On Wednesday, President Obama signed hate crime legislation (H.R. 1913 / S. 909) that extends protection to people with disabilities, among others. The new law expands federal hate crimes protection to include those committed due to gender and gender identity, sexual orientation and disability. It also loosens limits on when federal law enforcement can intervene and prosecute crimes -- the biggest expansion of the civil-rights era law in decades.

A brief video of President Obama's remarks is below, and you can click this hyperlink to review comments regarding this legislation on the White House Web site.

For more information, please view the U.S. Justice Department, Bureau of Justice Statistics special report about hate crimes or contact Annie Acosta at (202) 783-2229.

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Wednesday, October 28, 2009

Make a Fundraiser Out of Any Event —
And Raise Donations Online

Have you ever had a UCP supporter contact your affiliate inquiring about any of the following:

  1. Host a special event to benefit your organization,
  2. Collect donations to benefit your affiliate, or
  3. Provide information about how to host an event to benefit UCP?

Firstgiving.com makes all of the above a possibility without the need for an affiliate to invest in hosting an event or gathering donations. Anyone, regardless of whether they are specifically endorsed by UCP, can access Firstgiving.com's free service allowing the public to raise money for any charity that files IRS Form 990 and is located within the Guidestar.org database.


As of October 26, 2009, 2,165,082 people have helped raise $116,363,707 for 30,924 non-profits using Firstgiving.com

For example, UCP supporter Cesar Rondon participated in a non-UCP-related event in August 2009, and he wanted to raise money to donate to UCP. He found Firstgiving.com after speaking with the UCP national office and quickly set up his own event. After a few short steps, Cesar was off and running, or rather cycling to raise $2060.00 for UCP.

Great reasons to use this service:

  • It is a simple way for a supporter to set up a personalized event by raising funds for an organization without an affiliate having to worry about collecting and keeping track of donations at the event.
  • It crosses geographical boundaries. If a student studying overseas wants to hold an event on another continent, he or she can still ask his or her friends and relatives to support a cause by easily by signing up online.
  • The site is safe and secure, and friends and family donate via credit card.
  • Firstgiving.com provides advice and support through its blog, which offers tips and pointers about how to create successful events. The blog is available at OnlineFundraisingBlog.com
  • Reports are accessible online and available in real time.
  • And much more.

Here are some potential events that fundraisers can use to jump start an event dedicated to UCP:

Pool or Darts TournamentRead and Recall
Quiz TimeStory telling
BarbecuePicnic Party
Chess TournamentComedy Evening
BowlingSing or or Hold a Play
Video Games CompetitionFace Painting
Fancy Dress Walk or PartyCheese and Wine Party
Cooking ContestTreasure Hunt
Run a Marathon or to the End of the BlockClimb a Mountain
Ride in a Bike Event or RaceHost a Golf Scramble/Tournament Among Friends and Co-Workers
Host an End of the Year Holiday Event or Party

The fee for hosting an event on Firstgiving.com is 7.5% of each transaction, which covers securing each transaction online, connecting to Guidestar.org, providing support and ensuring a transfer of money to the benefiting organization. Please click the following hyperlink to learn more about how it works.

The following is a presentation from a Webinar hosted by Firstgiving.com: Nine ways to promote your personal online fundraising page and 99 places to do it.

For more information, please visit the Firstgiving.com Web site or contact Will Hull at (202) 973-7106.

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Information & Referral:
More October Disability-Related Awareness Events

October is coming to an end however I wanted to highlight a few more disability related awareness events that occur each October:

Spina Bifida Awareness Month

Every October, the Spina Bifida Association (SBA) raises public awareness about Spina Bifida during Spina Bifida Awareness Month. Throughout the year, and especially in October, SBA implements key programs and services to support its mission. SBA provides information through their National Resource Center and has Chapters nationwide.

Additional Information:

National Physical Therapy Month

National Physical Therapy Month, sponsored by the American Physical Therapy Association (APTA), is a nationwide observance held each October. This year's theme is "Move Forward: Physical Therapy Brings Motion to Life." Physical therapy is an important treatment for many people with developmental disabilities.

Additional Information

National Down Syndrome Awareness Month

The National Down Syndrome Society (NDSS) sponsors Down Syndrome Awareness month in October. During the month the Society has promoted the "My Great Story" campaign which honors and celebrates the great stories of the 400,000 Americans living with Down syndrome by showcasing these stories in a beautiful online storybook. This book will feature inspirational stories about work, school, friends, family, hobbies, travel, the NDSS Buddy Walk® program and many other things.

Additional Information:

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Announcements Week of October 28, 2009

Affiliate News

Webinars

  • Care2: Cause Marketing - Getting the Message Right for the New Consumer/Donor (November 5, 2009 2:00PM EST). As more consumers look to live lives of purpose, the cause-oriented marketing space has become increasingly crowded. Clear communication of your brand is more important than ever to cut through the noise. Join Care2 and BBMG for an informative webinar on how socially responsible brands and nonprofit organizations can leverage current consumer trends to win loyalty and inspire action.
  • National Family Caregivers Association: National Family Caregivers Association is hosting a free program for anyone caring for a loved one taking multiple medications called Safe & Sound: How to Prevent Medication Mishaps (November 12th, 2:00pm – 3:00pm EST). Anyone can listen to the free program by phone or online. The program will improve family caregivers understanding of their loved ones' medication issues. For information and registration visit the National Family Caregivers Association Web site or call (800) 896-3650.
  • Social Security Administration: Wounded Warriors Webinar (November 4, 2009, 2:00PM EST).

Information & Referral News

Other News

Fundraising News

Social Networking/Web 2.0

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Monday, October 26, 2009

Capitol Insider - Week of October 26, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Wednesday, October 21, 2009

Australian Affiliate Reports on CP Research

Keeping up to date with the latest research about cerebral palsy is now easier with a free weekly bulletin produced by the Australian UCP affiliate, The Spastic Centre. CP Research News covers intervention and prevention research, with abstract summaries about the findings. It's of interest to practitioners, researchers and management. To subscribe, e-mail Robyn Cummins with the words "Subscribe CP Research News" in the subject line. Back issues can be found on the Cerebral Palsy Institute Web site.

Bonus:

  • Please read The Spastic Centre's Blog: The Scene. The blog co-authors, Robyn Cummins and Katrina Welch, bring you details about news, events, activities, Web sites and great resources for people wit.h and family and care givers of those with cerebral palsy. Robyn and Katrina roam Australia and the globe looking for the best information to bring to blog readers.

For more information, please visit The Spastic Centre Web site or contact Robyn Cummins.

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Information & Referral: Ask Lara -
Exercise for People with Disabilities
or Chronic Health Problems

Q: I know that exercise is important however I have a disability and/or chronic health condition and do not know what I can do for exercise?

Source, Flickr User P3a7Ly: Disability Sports ExpoA: Regular exercise and activity benefits everybody, especially people with disabilities who are disproportionately affected by obesity and heart disease. Luckily, there are some great resources available to help people with disabilities or activity limitations engage in healthy exercise activities.

Exercise is Medicine, sponsored by the American Medical Association and The American College of Sports Medicine, has a mission to make physical activity and exercise a standard part of a disease prevention and medical treatment in the United States. They produce materials that address exercise issues for people with several common conditions, such as cerebral palsy, muscular dystrophy, cancer, brain injury and many others in the Your Prescription for Health series.

Exercise is Medicine also has materials for physicians, media, health and fitness professionals, and policy makers. Please view these materials to learn what you can do to help promote exercise and fitness for people with disabilities in your community.

Another great resource is the National Center on Physical Activity and Disability.

Additional Resources

Related UCPeople Articles:

Have a question about Information and Referral services? Ask Lara! Please contact Lara by e-mail or reach her by phone at (202) 776-0406 x7105.

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Announcements - Week of October 21, 2009

Affiliate News

Conferences/Summits

Other News

Marketing News

Fundraising News

Social Networking/Web 2.0

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Monday, October 19, 2009

Follow Up: The Art of Building Character,
A Mural Brings ‘Harmony’
to Dowd Center in Central Ohio

UCP of Central Ohio and Great Western Academy, an Imagine School, recently completed and installed a mural at the Dowd Center library thanks to a generous $1,000 grant from the Greater Columbus Arts Council (GCAC). The project, entitled The Art of Building Character, provided a fun learning experience for fifth grade students, while incorporating a mentorship opportunity for artists with disabilities.

The mural's theme was centered around characteristics and behaviors that successful people in history exhibited during their lives and is meant to promote positive behavior to the youth in central Ohio. Students who attend the after-school programs at the Dowd Center took part in a contest to name the mural, which is fittingly called "Harmony."

Prior to beginning the mural, UCP's participant artists and students from Great Western Academy attended a lecture and discussion about character traits. After identifying positive character traits, the students and artists integrated citizenship, kindness and integrity in the mural for the Dowd Center. The Dowd Center is part of the Homeless Families Foundation, which provides an after school and summer program for homeless and at-risk youth. The Dowd Center has approximately 125 participants and provides them with a curriculum to overcome their obstacles. In addition, the center offers a place where children can succeed academically, regardless of their background.

UCP of Central Ohio would like to thank the Greater Columbus Arts Council for their support in making this educational and artistic endeavor possible. Students, participants, artists and the community at large, all learned the importance of inclusion, acceptance and how learning can be fun. This collaborative effort enhances the cultural knowledge of elementary-aged children in greater Columbus through integration of art and textbook curriculum, in addition to creating an opportunity for artists from UCP to become mentors to the children. The Art of Building Character project also fits well into the framework of the GCAC Neighborhood Arts Program, because this funding enables UCP of Central Ohio's artists to develop artistically and improve learning experiences and quality of life for many students for years to come.

For more information regarding this project, please visit the UCP of Central Ohio Web site or contact Gina Ginn at (614) 279-0109 x209.

Related Post

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Capitol Insider - Week of October 19, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Thursday, October 15, 2009

Guest Post:
‘Treadmill Aids Children’s Motor Skills’
UCP of Central PA Consumer
Benefits from Early Intervention Therapy

By Erica Dolson, The Sentinel
Jason Malmont, photographer

Melodie Corcoran hits the treadmill four days a week for eight minutes at a time.

She listens to music as she works out.

She stands at 32 inches tall.

Luckily, the pediatric treadmill where the 20-month-old from Camp Hill, PA walks is only 32 inches long, 18 inches wide and 7.5 inches high.

Melodie has Down syndrome, a genetic condition in which a person has an extra chromosome. The pediatric treadmill is a tool proven by research to stimulate the automatic walking response in children with conditions, such as Down syndrome, that traditionally cause motor delays.

The treadmill is housed at the Capital Area Children's Center in Camp Hill, one of the facilities from which United Cerebral Palsy of Central Pennsylvania operates. It is currently available for use by all UCP of Central Pennsylvania families; within the next six months, families of children who receive Early Intervention services in Cumberland, Dauphin and Northern York counties will also be able to use the service.

"I'm so excited," said Diane Isham, physical therapist with UCP of Central Pennsylvania. "I've wanted to do this for awhile."

The benefits

Children with Down syndrome usually begin to walk about one year after their typically developing peers, Isham said. The repeated action of walking on the treadmill builds a child's strength and improves both the pattern and quality of their walking, Isham explained.

Research also shows it helps children with Down syndrome walk up to 101 days earlier than those without treadmill training, she added.

Therapists may also use an adult treadmill, at a speed of under a half-mile per hour, to achieve the same result, Isham said. To her knowledge, this is the only pediatric treadmill in the area.

The $1,300 treadmill was purchased with funds from the Jerry and Donna Nailor Fund through The Foundation for Enhancing Communities and the Central Pennsylvania Down Syndrome Awareness Group.

"We find out that someone in the central Pennsylvania Down syndrome community has a need, and we wanted to find the money so that need could be met," said Brian Guillaume, president of the board of the Central Pennsylvania Down Syndrome Awareness Group.

An ideal training schedule would be five days a week for eight minutes at a time, but because of the availability of the room at the center, families will have access to the treadmill only four days a week, Isham said.

Fun, too

Children can use the treadmill as soon as they can bear weight on their legs, Isham said, and the treadmill at UCP of Central Pennsylvania includes a suspension system to hold the child up.

Secured in the harness, Melodie looks safe, albeit a little silly, her mother, Wendy Corcoran said. Melodie has been training for about three weeks, and it's obvious that her experience has been fun, and effective, her mother said.

"She oftentimes smiles," Corcoran said. "I see her getting stronger. I see her legs, she moves them more because she knows what to do with them."

Isham offers one training session for families, she said. Families who are interested must go through their physical therapist.

The treadmill and suspension system have also been used to help children with cerebral palsy, an option UCP would like to investigate in the future, Isham said.

"This is one technique in a whole bag of techniques a therapist has," she said.

"If I can build up (Melodie's) strength, it builds her confidence. It builds my confidence as a parent," Wendy Corcoran said. "You know you're doing something to help her in the future."

In Focus

For more information on the pediatric treadmill, contact Diane Isham, UCP Central Pennsylvania physical therapist, at (717) 975-0611.

For more information, about the Central Pennsylvania Down Syndrome Awareness Group, visit their Web site or contact Brian Guillaume, president of the board, at (717) 218-0242.

For more information about this story, please contact Erica Dolson with The Sentinel or Lynda Bowen with UCP of Central Pennsylvania at (717) 975-0611 x253.

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Wednesday, October 14, 2009

UCP of Mobile’s Camp SMILE:
No Limit To The Adventure

Imagine the excitement of engaging people with disabilities in activities that empower them to just be themselves and have fun. That is the intention at United Cerebral Palsy of Mobile's Camp SMILE.

Last year, UCPeople reported about Peter Gaudet, a Camp SMILE participant featured on Extreme Makeover: Home Edition. This year, UCPeople is happy to report that 2009 marks Camp SMILE's first official year in West Mobile, resulting from the generosity of David and Debbie Pilot, who donated the use of Camp Grace as the official Camp SMILE site.

From mid-June through mid-July, campers and counselors had the chance to participate in fishing, archery, canoeing, raft cruises and most exciting of all, riding a zip line!

This year, Junior League of Mobile (JLM) volunteers headed up three activities for the campers, including archery, outdoor games and a special project decoupaging tissue onto canvass. For many volunteers and Camp SMILE staff, it was incredible to see campers engaging in archery, especially when many of them had never shot a bow and arrow. The smiles on their faces afterward said it all.

Outdoors, there were some intense games of volleyball and kickball, and everyone cheered for their friends regardless of the team.

Finally, all campers worked on a special project to decoupage tissue onto canvass. The pieces of art went to donors, which wouldn't have been possible without Camp SMILE and JLM volunteers.

JLM remains thrilled to continue its partnership with Camp SMILE as the organization carries out its mission to empower children and adults with disabilities to live their lives without limits by providing an inclusive summer camp experience where there is no limit to the adventure.

Read More

For more information, visit the Camp SMILE Web site or contact Marty Wheeler at (251) 479-4900.

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Information & Referral: Infantile Spasms Awareness Week

The Child Neurology Foundation has declared the week October 11-17 as Infantile Spasms Awareness Week (ISAW), and it has created a Web site to raise awareness about IS among pediatricians, child neurologists, parents and caregivers. The site contains downloadable brochures, posters and videos to help spread awareness about this little known condition.

Infantile Spasms (IS) are a form of Epilepsy that usually present in an infant's first few months of life and often go undiagnosed, leading to long term developmental and intellectual delays and disabilities. Early and aggressive treatment can impact the prognosis of infants diagnosed with IS. As with other disabilities, early intervention is key. Please follow this link to help spread the word about IS in your community.

Additional Information:

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Annoucements - Week of October 14, 2009

Affiliate News

Webinars

Other News

Fundraising News

Social Networking/Web 2.0

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Tuesday, October 13, 2009

Capitol Insider - Week of October 13, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Hate Crimes Legislation Passes
The House of Representatives:
Key Provisions To Protect
People with Disabilities

Previously, UCPeople reported on hate crimes legislation. On Thursday, October 8, 2009, hate crimes legislation passed the U.S. House of Representatives, and the bill will go to the Senate next. The hate crimes legislation would prohibit crimes "based on the actual or perceived race, color, religion, national origin, gender, sexual orientation, gender identity or disability of any person." The legislation would also give the federal government authority to prosecute violent hate crimes based on disability when local authorities fail to act. In addition, it would allocate $5 million each year to the Justice Department to provide assistance to local communities in investigating hate crimes. This legislation is attached to the Defense Authorization Bill, which funds operations in Iraq and Afghanistan, among other things. It is expected that the Senate will pass the bill and the President will sign it.

Hate crimes legislation comes on the heels of a recently released special report by the U.S. Justice Department's Bureau of Justice Statistics. The report, based on data from the 2007 National Crime Victimization Survey, found that people with disabilities experienced violent crime at a rate one and one-half times greater than people without disabilities. For females with disabilities, the rate was twice as high as women without disabilities. People with intellectual disabilities were most at risk. One in five people with disabilities who experienced violent crimes felt that they had become victims because of their disability.

The report can be found at:

For more information, please contact Annie Acosta at (202) 783-2229.

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Friday, October 9, 2009

Girl With Cerebral Palsy
Opens Hearts Through Artwork

Most kids expect to see their artwork on their parents' refrigerator, and not hanging in bank and credit union branches across the greater Sacramento, California region. Three years ago at age nine, Celeste Hewitt painted a swirling pink heart. This summer, her artwork became a symbol of how the greater Sacramento region is coming together to support local families with developmental disabilities.

For two months, local residents in five counties surrounding Sacramento had the opportunity to purchase a "Love My Family" heart at SAFE Credit Union branches, with proceeds supporting UCP of Greater Sacramento. After making a $5, $10 or $15 donation, each person printed their name on a copy of Celeste's artwork, which hung in the branches.

Each dollar amount was tied to a specific UCP program. The $5 hearts supported a child at the UCP Autism Center for Excellence at Sacramento State University, the region's only after-school therapeutic recreational program for kids with autism. For $10, local residents helped provide care for an exhausted parent caring for a developmentally disabled child, through the UCP of Greater Sacramento family respite program. By purchasing $15 hearts, local residents helped give a child or adult the chance to ride a horse while developing self-confidence and motor skills in the hippotherapy program, UCP Saddle Pals.

The campaign raised $7,000 for UCP of Greater Sacramento programs, showing how the community opened their wallets and hearts.

"Money goes a long way at our UCP affiliate," said Doug Bergman, president and CEO. "With $7,000, we can provide several hours of respite care to 50 families, cover the costs for more than 15 children to attend the UCP Autism Center for Excellence at Sacramento State for a month or provide a child with therapeutic horseback riding lessons for more than a year."

Equally important, the campaign taught young Celeste that she has a gift that makes a difference. She has not let cerebral palsy stop her from being an artist—or a traveler or equestrian, for that matter. She is living life without limits, and thanks to her beautiful artwork, others will too.

For more information, please contact Samantha Garcia at (916) 565-7700.

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Wednesday, October 7, 2009

Information & Referal:
October is National Disability
Employment Awareness Month

Congress designates each October as National Disability Employment Awareness Month (NDEAM). As stated on the Office of Disability Policy (ODEP) Web site, this effort to educate the American public about issues related to disability and employment actually began in 1945, when Congress enacted a law declaring the first week in October each year "National Employ the Physically Handicapped Week." In 1962, the word "physically" was removed to acknowledge the employment needs and contributions of individuals with all types of disabilities. In 1988, Congress expanded the week to a month and changed the name to "National Disability Employment Awareness Month."

This year's NDEAM theme is Expectation + Opportunity = Full Participation.

Please click here to learn more about NDEAM and related activities that will be held during the month.

The American Association of People with Disabilities (AAPD) sponsors Disability Mentoring Day (DMD) each year during NDEAM. This year, it falls on October 21st. DMD is a large-scale national effort to promote career development for students and job seekers with disabilities, through hands-on career exploration, on-site job shadowing, and ongoing mentoring leading to internship and employment opportunities. Please click the following hyperlink to find DMD Coordinators and activities in your area.

According to the Bureau of Labor Statistics, people with disabilities experience disproportionate levels of unemployment and under-employment. In September 2009, the percentage of people with disabilities in the labor force was 22% compared with 70.5% for persons with no disability. The unemployment rate for those with disabilities was 16.2%, compared with 9.2% for persons with no disability. Events like NDEAM highlight this disparity and lead to efforts that will hopefully improve the recruitment and retention of people with disabilities into the workforce.

Additional Resources:

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Annoucements - Week of October 7, 2009

National News

Affiliate News

  • UCP of West Alabama: Tuscaloosa News - State Fair begins today. "United Cerebral Palsy of West Alabama is sponsoring the fair for the first time this year, and partnered with the Tuscaloosa County Park and Recreation Authority to use Sokol Park for the event."

Online Documentary

  • The Specials: The Web-based series follows the ups and the downs of the lives of a group of 20-something housemates with developmental disabilities (four with Down syndrome, one with Williams syndrome). The group lives in Brighton, UK and is providing the voiceover for the series. It's funny, touching, honest and definitely note worthy.

Other News

Advocacy

Fundraising News

Social Networking/Web 2.0

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Tuesday, October 6, 2009

Starting a Monthly Giving Program...
So Easy, Anyone Can Do It

Has your affiliate ever wanted to start an online monthly donor giving program, but you didn't know where to start?

Now is the perfect time to kick off this type of program during the end-of-year holiday season through a tool available from Network for Good. All you need is your Tax EIN and a place to host a link, such as the homepage of your affiliate Web site or perhaps your Facebook fan page. You can learn more about the fees that are incurred during each transaction by clicking this hyperlink.

Some of the benefits of a monthly giving program, include:

  • Users may start/stop payments at their own choosing and there is no administrative paperwork.
  • All donations processed by Facebook Causes and Change.org also process through your account with Network for Good.
  • This is a service you can offer your donors to save money at the end of the year while also making a big impact when monthly donations add up, come December.
    • For example, the average online donation is $25. If this were a monthly giving donor, that would result in $300/year!
  • The donor has an option to donate monthly, quarterly or annually.
  • The donor can view your organization background through a connection to your Guidestar.org profile, right from the monthly giving page.
  • The donor can designate and dedicate their funds.
  • Network for Good mails a check to your affiliate on a monthly basis.
  • What have you got to loose?

Here's how it works:

  • First, you use the Web address below as a template. Notice the last digits after the equal sign: 20-3568840 (this is the UCP national office Tax EIN).
  • Second, replace the UCP national office Tax EIN with your affiliate Tax EIN as part of this link.
  • Third, test the link to make sure that it works. It should take you to a Web page that looks like the one below:
  • Fourth, share the link with everyone you know:
    • Host it on your Web site.
    • Host it on MySpace, Facebook, Change.org, Twitter, etc..
    • Send e-mails to your colleagues and current donors with information about how to use the new option to set up monthly giving.
    • Print it on your business cards, letterhead, bumper stickers, refrigerator magnets, etc.
    • Add it to your e-mail signature as an additional way to save big at the end of the year.

Monthly giving can ease your administrative costs and increase the overall donation amount you receive annually, with incremental increases each month. This is a great idea for a family on a budget or anyone who would like to stretch the value of their dollar for your affiliate. We hope you can take advantage of this opportunity to expand your development program if you haven't already done so.

For more information, please contact Will Hull at (202) 973-7106.

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Guest Post:
Full of Life and Accomplishment
UCP of Central Arizona Ambassador
Dae'vionte

By Tashira and Mitchell, Dae'vionte's Parents

Dae'vionte, nicknamed "Dae" is a loving three year old who is diagnosed with Septo-Optic Dysplasia, critical visual impairments, malformations of the brain and significant developmental delays. Despite his disabilities, he is a vivacious little boy who loves to explore new things. Dae enjoys spending time outside and especially loves to swing, slide and crawl under anything humanly possible. His personality and high spirits seem to touch the hearts of everyone he encounters, and leaves them smiling.

Dae has been attending UCP of Central Arizona's Early Learning Center in Phoenix for one and a half years and has made many great strides since his arrival. When introduced to UCP of Central Arizona, Dae was unable to walk independently. Within a month or so, he was off and walking. This accomplishment served as a big milestone for him, and with it came a new found sense of independence and mobility, which prompted Dae to explore many things that he had once feared.

UCP of Central Arizona has created an environment where Dae is constantly interacting with a diverse group of peers, which teaches him many new things and often motivates him to try to achieve things that previously, his disabilities would inhibit or hinder. UCP of Central Arizona has helped to create structure in his life and continues to help Dae learn the necessary skills to lead a life without limits, despite his disabilities. The services offered by UCP of Central Arizona are a warm welcoming addition to our lives, and they serve us in an equal and inclusive manner. UCP of Central Arizona will not allow Dae's disability define who he is and the affiliate has an optimistic outlook for his potential.

With the continuing support from programs at UCP of Central Arizona coupled with Dae's determination, we have no doubt in our minds and hearts that one day he will be enjoying and doing many more similar things like others his age. Dae's continued success and goal accomplishments are an excellent example of UCP's motto and purpose "Life without Limits for People with Disabilities."

"He has a beautiful spirit! He came to us almost two years ago and has grown so much... he has progressed to eating most table foods and drinking from an open cup. He continues to improve his communication skills," said Carol Proch, Early Learning Director for UCP of Central Arizona. "Dae is a very happy boy, enjoys the outside and life itself."

To date, Dae has mastered one phrase, which is "Uh-oh." We like to think that it is his way of telling people who choose to define him based on his disabilities, "Uh-oh" they are wrong about him. He CAN and WILL accomplish many things.

For more information or to learn about other UCP of Central Arizona ambassadors, please visit the UCP of Central Arizona Web site or contact Alma Chavez-Lira at (602) 943-5472.

Read More...

Monday, October 5, 2009

Capitol Insider - Week of October 5, 2009

Read Capitol Insider for an overview of the week's most important public policy events.

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Information & Referral:
October 5th is National Child Health Day

Since 1928, when U.S. President Calvin Coolidge proclaimed one day each year national Child Health Day, people across America have worked together to improve childhood health. The day has been observed on the first Monday in October since 1960.

The American Academy of Pediatrics (AAP) / National Center for Medical Home Implementation is celebrating the day by highlighting "medical home," since it is such an important part of improving the health for all children and youth. Medical home is defined as a model of delivering primary care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate and culturally effective.

Additional Resources

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Friday, October 2, 2009

Recap: UCP Economic Forum and
60 Years and Onward Celebration

Wednesday night's Life Without Limits Economic Forum focused on highlighting the economic potential of the disability community, and the event went off without a hitch. Life Without Limits Chairman and author of the Americans with Disabilities Act, Tony Coelho, opened the event and introduced his friend and the evening's Keynote Speaker, Assistant Secretary Kathy Martinez, Office of Disability Employment Policy (ODEP), U.S. Department of Labor. Martinez praised the Life Without Limits initiative as being in sync with the goals of ODEP and said she looked forward to collaborating with UCP in the future.

Forum co-chairs Dustin Longstreth and Rich Donovan, both of consulting firm Integrated Process Solutions (IPS), gave a presentation outlining the disability consumer market and offered some proactive steps that business leaders can take to learn more about it.

Several presenters gave a brief overview of healthcare innovations, including UCP President & CEO Stephen Bennett, UCP Chief Technology Officer Greg Elin, who discussed the progress that open sourced innovational technology has experienced since the 1980s and the impending demands that will be placed on the system from the baby boomer generation. John Kuniholm from the Open Prosthetics Project provided evidence of how much technology has changed in society, and he noted that innovations have remained the same for people with disabilities by showing chronological slides comparing data since the early 1900s. Frank Hecker, Director of Grants and Programs at the Mozilla Foundation, discussed the innovations explored by the Mozilla Foundation in an open sourced capacity to develop new accessible technologies, including a screen reading software developed by a visually impaired person in Australia. All of Forum participants engaged in a lively and fascinating discussion about the intersection of technology and disability and the possibilities to integrate into the business world.


Assistant Secretary
Kathy Martinez, Office of Disability
Employment Policy (ODEP)

John Kuniholm from
the Open Prosthetics Project


Full Panel: From L to R:
John Kuniholm from the Open Prosthetics Project,
UCP Chief Technology Officer Greg Elin,
Frank Hecker, the Director of Grants and Programs at the Mozilla Foundation,
Dustin Longstreth, Integrated Process Solutions LLC and
Richard Donovan, Board Member, Integrated Process Solutions LLC
View More Photos on Flickr.com

The Forum concluded with an agreement by all that progress towards full employment and economic prosperity for people with disabilities would only be made through cooperation amongst government, business, and non-profit communities.

Following the Forum, participants joined other invited guests at the 60 Years and Onward Celebration. The theme for the evening was "Toasts, Tastes and Testimonials."

ABC's Terry Moran, the host of "Nightline," emceed the Celebration as Master of Ceremonies, and UCP Board Trustee and Emmy-nominated actress Cheryl Hines gave out the evening's awards. UCP of the North Bay won the No Limits Award for their outstanding employment program for people with disabilities, and WineBev Inc. and Autistic Self Advocacy Network (ASAN) President Ari Ne'eman won the Expanding Horizons Award for his work advocating for rights and dignity for persons on the autism spectrum.

ABC News Co-Anchor
'Nightline', Terry Moran

Actor, Cheryl Hines


Autistic Self Advocacy Network (ASAN) President Ari Ne'eman
Winner of the 2009 UCP Expanding Horizons Award
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The highlight of the evening was a video that chronicles the formation, early years and development of UCP and its growth into an organization of parents of children with cerebral palsy in the New York area, to an international network of affiliates that provide programs and services to over 176,000 people with disabilities, every day. Featuring interviews and classic footage of past UCP telethons, this video delighted the audience and was produced through the support of UCP Board Trustee Loreen Arbus.

Much of the evening was spent surrounding the idea that the future holds great possibility for UCP. Stephen Bennett explained, "But we're not done. We still have work to do. Our work isn't finished."

For more information, please visit the United Cerebral Palsy Web site or for media inquiries, please contact Lauren Cozzi at (202) 776-0406 x7114.

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