Wednesday, June 30, 2010

Announcements - June 30, 2010

UCP in the News

Fundraising & Events
Resources
  • The ARC: Post Traumatic Stress Disorder (PTSD) and People With Disabilities (Jul. 13 1:30 - 3:00 p.m. EST) Register today! Join Dr. Jack McCarthy from the EMDR Humanitarian Assistance Programs for a webinar that explains how traumatic experiences affect people with disabilities.
  • PR News: Webinar: How to Use SEO to Increase Visibility and ROI (Jul. 14, 1:30 - 3:00 p.m. EST) Register Today! SEO experts will show you how to optimize your social media PR efforts, and will also give you insights into how to stay ahead of Google's always-changing search algorithms.
  • National Conference of Executives of The Arc: Webinar: Let A Thousand Flowers Bloom: Managing Technology to Meet Your Mission (for Nonprofit Leaders) (Jul. 15, 1:00 – 2:00 p.m. EST). Register today! Learn how to maximize your chapter’s effectiveness and impact using technology! Co-hosted by NCE and NTEN.
  • Reinventing Quality: 2010 Conference: Doing Right by People in Challenging Times (Aug. 8 - Aug. 10) Register today! This year’s conference focuses on how the most forward thinking states and providers are not only weathering the economic crisis but using it as a fulcrum to improve quality and lives.
  • AFP: Creating Incentives and Remove Barriers (Oct. 22) Register today! Join a webinar featuring Federal Agency partners discussing programs, incentives and new initiatives to remove barriers and promote employment.
Advocacy, Disability, & Web 2.0 News

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Monday, June 28, 2010

The Capitol Insider - June 28, 2010

Volume 15, Issue 25
June 28, 2010



Action Alerts

None.

Major Events Last Week

Medicaid

The Senate again fell short of votes to end debate on the tax extender bill. The bill extends expiring tax breaks and contains domestic spending, including the six month extension of the temporary increase in the federal share of Medicaid spending (FMAP). After failing to pass twice the week before, the Senate again was only able to secure 57 votes in support of the bill, three short of what they needed to move forward. According to the National Conference of State Legislatures, 30 states have already budgeted for the Medicaid funds, which would provide additional money for six months beginning Jan. 1. Of those states, only 9 have contingency plans in place if the money doesn't arrive. The bill faces an uncertain future as the Senate turns its attention to other issues. Unless an FMAP extension is passed, most states will likely make significant cuts to their Medicaid programs for FY 2011.

ADA/Olmstead

The U.S. District Court in Jacksonville, Florida ordered the state of Florida to provide home and community based services to Michele Haddad who has quadriplegia and has lived in the community with support for several years. When Ms. Haddad's caregiver situation changed, she asked the state to provide the support services. Florida told her that the only way she could get the services was by entering a nursing home. The court ruled that placement in a nursing home would be discrimination. The U.S. Department of Justice (DOJ) filed an amicus brief in the case in support of Ms. Haddad. See DOJ's press release at: http://www.justice.gov/opa/pr/2010/June/10-crt-741.html.

In honor of the one year anniversary of the Year of Community Living and the eleven year anniversary of the Olmstead decision, the Department of Health and Human Services (HHS) announced a new program within the Community Living Initiative. The Housing Capacity Building Initiative for Community Living is a $3.2 million, three-year contract designed to create partnership between HHS and the Department of Housing and Urban Development (HUD). The initiative will provide technical assistance to state and local entities to plan and implement effective program options that link housing with long-term care services and supports for people with disabilities and older adults.

The Centers for Medicare & Medicaid Services issued a letter to state Medicaid directors on the extension of the Money Follows the Person (MFP) Rebalancing Demonstration. The Affordable Care Act authorized $450 million per year through fiscal year 2016 to maintain the MFP rebalancing demonstration grant program. MFP began in 2005 to increase the use of home and community based services (HCBS). Twenty-nine states and the District of Columbia have implemented MFP demonstration projects, bringing approximately 6,000 people out of institutions. With the extension of the program, additional states are able to start MFP demonstration projects, and the existing states will be able to seamlessly transition into the next five years. The extension of the program also changes the definition of individuals eligible to participate in MFP. Instead of having resided in an institution for more than 6 months, individuals are eligible for MFP after residing in an institution for more than 90 days.

Major Events Ahead

Appropriations/Housing


On Thursday, the House Transportation, Housing and Urban Development and Related Agencies Appropriations Subcommittee, chaired by Rep. John Olver (D-MA), may mark up its FY 2011 bill.
The Arc and UCP have aggressively been working to restore a proposed cut which would eliminate production of new units in the Section 811 Supportive Housing for Persons with Disabilities program.

Fiscal Commission

The National Commission on Fiscal Responsibility and Reform will meet in Washington on Wednesday morning, with the afternoon devoted to taking testimony from interested organizations.
The Commission is charged with making recommendations to address the federal deficit and all federal programs are on the table in the Commission's deliberations. The Commission proceedings can be watched live through the Commission's website: http://www.fiscalcommission.gov/

Announcements

Senator Robert Byrd

Senator Robert Byrd (D-WV) passed away early this morning at the age of 92. Senator Byrd was the longest serving Member of Congress in U.S. history. Byrd held many Senate leadership positions including Senate Majority Leader (1977-80). He was the Chairman of the Senate Appropriations Committee from 1989 to early 2009. He continued to serve on the Appropriations Committee in addition to the Armed Services Committee, the Committee on Rules and Administration, and the Budget Committee. Senator Byrd's death will make it more difficult for Democrats to secure votes for their priority legislation during the remainder of the 111th Congress.

Accessible Medical Equipment

The Patient Protection and Affordable Care Act passed in March requires the US Access Board to develop accessibility standards for medical equipment, including examination tables, x-ray machines, mammography equipment, and weight scales, over the next two years. On July 29 the Board will hold a public meeting to allow interested parties and members of the public to provide input on the approach to this rulemaking. For more information, see:
http://www.access-board.gov/news/medical-equipment-mtg.htm.

National Council on Disability

The U.S. Senate unanimously confirmed Ari Ne'eman to become the first person with autism to serve on the National Council on Disability. The Council, an independent Federal agency, makes recommendations on disability policy to the President, Congress and Federal agencies. President Obama appointed Mr. Ne'eman along with seven others in December but a unanimous hold was placed on Mr. Ne'eman's appointment. The hold, which prevented the Senate from voting on the nomination, was lifted last Tuesday morning. For more information on the council and its members see: http://www.ncd.gov/newsroom/members/members.htm.

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Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

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Wednesday, June 23, 2010

Announcements - Weeks of June 16 - June 23, 2010

UCP in the News

News Coverage: UCP National / Capability Scotland Celebration, Embassy Residence of  British Ambassador
Affiliate Action Items, Updates & Events
Resources
  • PR News: Webinar: How to Use SEO to Increase Visibility and ROI (Jul. 14, 1:30 - 3:00 p.m. ET) Register Today! SEO experts will show you how to optimize your social media PR efforts, and will also give you insights into how to stay ahead of Google's always-changing search algorithms.
  • Reinventing Quality: 2010 Conference: Doing Right by People in Challenging Times (Aug. 8 - Aug. 10) Register today! This year’s conference focuses on how the most forward thinking states and providers are not only weathering the economic crisis but using it as a fulcrum to improve quality and lives. The Reinventing Quality Conference is the premier gathering place for people with intellectual/developmental disabilities, family members, direct support professionals, administrators of community support agencies, advocates, managers, and government leaders – all committed to a vision of a better future for people with intellectual/ developmental disabilities.
  • National Conference of Executives of The Arc: Webinar: Let A Thousand Flowers Bloom: Managing Technology to Meet Your Mission (for Nonprofit Leaders) (Jul. 15, 1:00 – 2:00 p.m. ET). Register today! Learn how to maximize your chapter’s effectiveness and impact using technology! Co-hosted by NCE and NTEN.
Advocacy, Disability, Fundraising & Web 2.0 News

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Monday, June 21, 2010

The Capitol Insider - Week of June 21, 2010

Volume 15, Issue 24
June 21, 2010



Action Alerts

Targeted alert for constituents of the 62 Senators that voted for a bill that contained a provision for an extension of the increase in the federal share of Medicaid: Huge Medicaid Cuts are Still at Stake. Make sure your Senator(s) continue to support extending the increase in the federal share of Medicaid.

Major Events Last Week 

Medicaid

The Senate failed twice last week to pass the tax extender bill which extends expiring tax breaks, and contains domestic spending including the six month extension of the American Recovery and Reinvestment Act's temporary increase in the federal share of Medicaid spending (FMAP). The debate has been about how much of the bill is paid for by raising other revenue or cutting spending and the overall size of the bill. After the first test vote on the bill failed on June 16th the leadership modified the bill and reduced the cost. On Thursday, after the Senate failed by four votes to end the debate on the bill, the Democrat leadership decided to separately pass a bill to delay the 21% cut in pay to Medicare doctors. Delaying the cut in pay enjoys widespread political support but removing that provision may lessen overall support for the tax extender bill.

CLASS Act

DPC staff participated in a roundtable on the implementation of the Community Living Assistance Services and Supports (CLASS) Act which was enacted as part of health reform. Sponsored by AARP, the roundtable brought together experts from the disability and aging communities, the Obama Administration, human services resource managers, the insurance industry, think tanks, and marketing industry to discuss numerous aspects of implementation of the new program which must be taken into account as the program is designed and developed. Development of the CLASS program is expected to take months and will require significant regulation. The DPC staff will remain an active participant and monitor progress as the program develops.

Emergency Preparedness

The House Committee on Homeland Security's Subcommittee on Emergency Communications, Preparedness, and Response held a hearing concerning the Federal Emergency Management Agency's (FEMA) ability to rescue people with disabilities, those living in institutions, and the aged in the event of an emergency. Committee members questioned Marcie Roth, the Senior Advisor for Disability Issues at the US Department of Homeland Security, about how her agency, that has a budget of only $150,000 and one full-time paid staff member, could execute an effective rescue plan. Ms. Roth replied that her efforts have been to help FEMA and its Federal partners, states and local communities shift away from viewing people with disabilities as "special" or "vulnerable" toward integrating the needs of people with disabilities into general emergency management planning and response efforts. When asked about creating a voluntary registry of potential disaster victims who have disabilities so that rescuers could help them evacuate, Ms. Roth said that she did not have the budget for such a registry. She said that a registry without funding to provide services would only give people false hope. FEMA is developing several written frameworks that integrate the needs of people with disabilities into disaster mitigation, response and recovery plans.

Quality Assurance

DPC staff participated in the first in a series of workgroup meetings of the Long Term Quality Alliance, an organization devoted to improving the effectiveness and efficiency of care and the quality of life of people receiving long term services and supports by fostering person- and family-centered quality measurement and advancing innovative best practices. Three workgroups have been established: Quality Measurement/Key Indicators; Quality Improvement/Best Practices; and Outreach/Public Awareness. Initial short-term goals of the LTQA include reducing unnecessary hospitalizations and effective transition planning.

Obama Administration Bans Lobbyists

On Friday, the Obama Administration announced more details of the President's desire to exclude registered lobbyists from federal advisory boards and commissions. Advisory boards and commissions have been told not to re-appoint any current members who are lobbyists and to not appoint any new members who are lobbyists. The Administration's strategy reflects a desire to open the boards and commissions to "fresh faces and engaging more Americans in our governing process". Some lobby groups are concerned that the Administration is limiting itself from the expertise that lobbyists have on issues.

Major Events Ahead

U. S. Congress

The Congress returns to action after the one week Memorial Day recess. It will meet for four weeks until the beginning of the Independence Day recess. This time frame is seen as a crucial for the Congress to make progress on bills it intends to bring to completion before the November elections. Its priority agenda should include legislation to keep federal programs operating at the start of Fiscal Year 2011 which starts on October 1. Few, if any, Fiscal Year 2011 appropriations bills are likely to be signed into law before the fiscal year begins. Passing key bills will be a huge challenge for Members of Congress, especially in the Senate, who are caught between saving jobs and increasing the federal deficit.

Medicaid

The Senate is expected to return to debate on the tax extender bill towards the end of the week. A new version of the bill has not been released as the Senate leadership tries to determine what combination of provisions can gain enough support to reach 60 votes. The FMAP extension has been in previous versions of the bill but may be a target for reduction or removal from the package as key moderate Senators have suggested that scaling back the extension would make the bill more fiscally responsible.

Fiscal Year 2011 Budget

Neither House of Congress appears capable of producing a FY 2011 Budget Resolution. A Budget Resolution (BR) sets the spending caps on discretionary programs such as defense and human services programs. With no anticipated support from House and Senate Republicans, the Democratic leadership is wary of obtaining sufficient support from among its fiscally conservative members. A BR would also shed a brighter light on the rising federal debt when the nation seems reluctant to increase federal spending. Without a BR, the Congress would have to pass a "budget enforcement resolution" that would set the cap on discretionary spending for the new fiscal year that begins on October 1. With the Congress slated to be in session only nine weeks prior to the start of the new fiscal year, it is virtually assured that the majority of the twelve appropriations bills will not be enacted before October 1, thus forcing the Congress the adopt a Continuing Resolution to keep the federal government operating on October 1. In any case, human services discretionary spending is not expected to increase for many programs. The Obama Administration has recommended a three year freeze on discretionary spending.

ADA and Olmstead Enforcement

The Senate Health, Education, Labor and Pensions Committee (Chairman Harkin, D-Iowa) will hold a hearing on enforcement of the Americans with Disabilities Act (ADA) and the US Supreme Court's Olmstead decision on Tuesday, June 22 at 2:30 p.m. Scheduled to testify are Tom Perez, Assistant Attorney General for the Civil Rights Division of the US Department of Justice, Cindy Mann, Director, Center for Medicaid and State Operations, U.S. Department of Health and Human Services, Robert Bernstein, Executive Director, Bazelon Center for Mental Health Law, Nancy Thaler, Executive Director, National Association of State Directors of Developmental Disabilities Services, Kelly Buckland, Executive Director, National Council on Independent Living, and Jeffrey Knight, an individual who recently moved to the community from a nursing home. The hearing will focus on ensuring community opportunities for individuals with disabilities.

Health Reform

The White House expects to launch its web portal to the Pre-Existing Condition Insurance Plan on July 1. The Plan is the temporary high-risk pool established by the new health reform law to be run by the federal government for those states which choose not to run their own programs. The Plan is designed to cover those individuals with pre-existing conditions who have not been insured for the 6 months prior to application. Twenty states have elected to have the Department of Health and Human Services run the high risk pool program in their states: AL, AZ, DE, FL, GA, HI, ID, IN, KY, LA, MN, MS, NE, NV, ND, SC, TN, TX, VA, and WY. (UT and RI are undecided.) The temporary plan will continue until 2014 when access to the health insurance exchanges becomes available. The DPC will provide more details as they become available, including information on access to the plans in states which choose to run their own pre-existing conditions high-risk pools.

Education Funding

House Appropriations Committee Chairman David Obey (D-WI) is hoping to include a $23 billion emergency increase for education as part of the supplemental war spending bill. The education funding is meant to avoid anticipated massive layoffs of school personnel as the American Recovery and Reinvestment Act education increases expire this fall. Support for this funding will likely depend on finding offsetting revenues so that the new spending will not increase the federal debt.

IDEA Maintenance of Effort

The Individuals with Disabilities Education Act (IDEA) contains a provision that allows states to seek a waiver from the federal government from the law's maintenance of effort (MOE) requirement. The MOE prohibits states from reducing the state and local government's share of IDEA financing, except when a waiver is granted for "exceptional and uncontrollable circumstances". Major revenue shortfalls and escalating special education costs have placed a number of states in financial jeopardy. Four states: Kansas, Iowa, South Carolina and West Virginia have recently submitted MOE waivers. The U.S. Department of Education has approved the Kansas and Iowa waiver requests. The South Carolina and West Virginia requests are under review. When granting a waiver, the Department does so on a case by case basis considering a number of factors. The Office of Special Education and Rehabilitative Services (OSERS) released a memorandum today that explains the factors it is considering, including the requirement that every IDEA student continue to receive a free appropriate public education (FAPE) during the time the MOE waiver is granted. To access the OSERS document, use this link http://www2.ed.gov/policy/speced/guid/idea/moe-waivers.pdf.

Announcements

Voting


The Election Assistance Commission (EAC) launched a new website (http://www.eac.gov) with many enhancements. A video about the new site is available at http://www.eac.gov/multimedia. EAC says that the website allows users to find information more easily and has an Election Resource Library that allows users to find materials easily. Users can sign up for email alerts about upcoming meetings, new reports, and agency news. The multimedia center has training videos on voting accessibility and voting system testing and certification.

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Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

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Friday, June 18, 2010

British Ambassador & Lady Sheinwald Graciously Host Event at Embassy Residence

Commemorating Anniversaries Advancing Rights of People with Disabilities at the Embassy Residence of the British Ambassador

Left to Right: British Ambassador Sir Nigel Sheinwald; Lady Sheinwald; Alan Dickson, Chief Executive, Capability Scotland; Stephen Bennett, President & CEO, United Cerebral Palsy; Michael Burke, Jr., Chair; United Cerebral Palsy Young Benefactors

Last night, by kind permission of the British Ambassador and Lady Sheinwald, United Cerebral Palsy (UCP) and UCP affiliate Capability Scotland commemorated the 20th anniversary of the Americans with Disabilities Act (ADA) and the 15th anniversary of the Disability Discrimination Act (DDA) in the United Kingdom. The event honored the efforts of those who created these landmark laws and continue to work to achieve a Life Without Limits for people with disabilities at the at the Embassy Residence of the British Ambassador in Washington, DC.

“The excitement generated at last night’s event hosted by the British Ambassador and Lady Sheinwald is a critical step in our global movement to achieve a Life Without Limits for people with disabilities,” said Stephen Bennett, President & CEO, United Cerebral Palsy. “Celebrating historic pieces of civil rights legislation that radically changed the lives of all people with disabilities – the Americans with Disabilities Act and the UK’s Disability Discrimination Act – compound how far we have come in the last 60 years since United Cerebral Palsy was founded. We should use the 20th and 15th anniversaries of this legislation as benchmarks for the key landmarks that will come next for people with disabilities. We must sustain a movement with a single goal: ensuring a life without limits for people with disabilities.”

In addition to the hosts, British Ambassador & Lady Sheinwald, attendees included Actor and UCP Board Trustee Cheryl Hines; Alan Dickson, Chief Executive, Capability Scotland; Stephen Bennett, President & CEO, United Cerebral Palsy; Bruce Merlin Fried, Chair, Board of Trustees, United Cerebral Palsy; Joe Stettinius, President, Cassidy Turley, the event’s Transatlantic Underwriter; Linda, Jack and David Maguire; current and former legislators; government officials; corporate leaders; advocates; members of the United Cerebral Palsy Board of Trustees, the majority of whom are people, or part of family, impacted by disabilities; and embassy staff.

Actor & United Cerebral Palsy Board Trustee Cheryl Hines with Newly Launched United Cerebral Palsy Young Benefactors

Also in attendance were the United Cerebral Palsy Young Benefactors, a new group of young men and women who support, communicate and extend the vision of Life Without Limits for people with disabilities and transform the cause to bring this vision closer to reality.

British Ambassador’s blog
An overview of last night’s event, written by the British Ambassador, is available on his blog at http://blogs.fco.gov.uk/roller/sheinwald/entry/united_cerebral_palsy_capability_scotland.

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Thursday, June 17, 2010

United Cerebral Palsy & Capability Scotland Celebrate Efforts to Advance the Rights & Lives of People with Disabilities with British Ambassador & Lady Sheinwald

United Cerebral Palsy (UCP) and UCP affiliate, Capability Scotland will commemorate the 20th anniversary of the Americans with Disabilities Act (ADA) and the 15th anniversary of the Disability Discrimination Act (DDA) in the United Kingdom, and honor the efforts of those who created these landmark laws and continue to work to achieve a Life Without Limits for people with disabilities Thursday, June 17 at the Embassy Residence of the British Ambassador in Washington, DC.

Attendees will include Actor and UCP Board Trustee Cheryl Hines Alan Dickson, Chief Executive, Capability Scotland; Stephen Bennett, President & CEO, United Cerebral Palsy; current and former legislators; government officials; corporate leaders; advocates and embassy staff. Also in attendance are the United Cerebral Palsy Young Benefactors, a new group of young men and women who support, communicate and extend the vision of Life Without Limits for people with disabilities and transform the cause to bring this vision closer to reality.

Media Coverage:

FOX 5 WTTG-TV News, Washington, D.C.
Curb Your Enthusiasm's Cheryl Hines Promotes Awareness for Cerebral Palsy

Actress & UCP Board Trustee Cheryl Hines discusses tonight's UCP/Capability Scotland event at the British Embassy on FOX 5 WTTG-TV News in Washington, DC.




Looking to the Stars: The World of Celebrity Giving
Cheryl Hines To Attend United Cerebral Palsy Charity Event

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Monday, June 14, 2010

The Capitol Insider - Week of June 14, 2010

Volume 15, Issue 23
June 14, 2010


Action Alerts

Targeted alert for constituents of the 62 Senators that voted for a bill that contained a provision for an extension of the increase in the federal share of Medicaid: Huge Medicaid Cuts are Still at Stake. Make sure your Senator(s) continue to support extending the increase in the federal share of Medicaid.

Major Events Last Week

Medicaid

The full Senate began consideration of a tax extenders bill. The bill includes the six month extension of the American Recovery and Reinvestment Act's temporary increase in the federal share of Medicaid spending (FMAP). It is unclear if the Senate has the 60 votes needed to pass the bill. Many Senators have expressed concern about the growing deficit and the need to pay for additional spending.

ADA/Olmstead

The U.S. Department of Justice reached settlement agreements under Title II of the Americans with Disabilities Act (ADA) with Smyth County, Virginia and Lancaster County, Pennsylvania to improve access to their facilities, programs and services, including polling places and emergency services. Lancaster County was ordered to pay $1,000 to a veteran who was denied access to the court system. Title II applies to state and local governments. For additional information, see: http://www.ada.gov/civicac.htm.

Technology

The House Energy and Commerce Committee Subcommittee on Communications, Technology and the Internet held a hearing on HR 3101, the Twenty-first Century Communications and Video Accessibility Act of 2009, sponsored by Representative Edward Markey (D-MA.). The bill would enable people with disabilities to fully use broadband services and equipment and provide better access to video programming devices such as remote controls, menus on DVD players, etc. Read testimony and download the video at:
http://energycommerce.house.gov/index.php?option=com_content&view=article&id=2038:hearing-on-hr-3101-the-twenty-first-century-communications-and-video-accessibility-act-of-2009&catid=134:subcommittee-on-communications-technology-and-the-internet&Itemid=74.

Major Events Ahead

Medicaid

The Senate is tentatively scheduled to vote on the tax extenders bill this week, though it is unclear if it will have the 60 votes needed to move forward. As of press time, the Senate bill includes the six month extension of the American Recovery and Reinvestment Act's temporary increase in the federal share of Medicaid spending (FMAP). While the majority of Senators have previously voted for the extension, negotiations continue as the Senate tries to find enough votes to avoid a filibuster and pass the bill.

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Previous issues of the Capitol Insider may be viewed at www.UCP.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

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Thursday, June 10, 2010

Please Vote Daily in June for UCP of Northern, Central and Southern New Jersey to Win a Pepsi Refresh Grant!

United Cerebral Palsy of Northern, Central and Southern New Jersey
is competing for a Pepsi Refresh grant.

Please vote today and every day through June 30!

If successful, UCP of Northern, Central and Southern New Jersey will win $50,000 towards supporting its Community Mentors program for teens and young adults with disabilities. Community Mentors is an innovative service provided by the affiliate, which offers teens and young adults with disabilities one to one mentoring as they strive for independence and a life without limits.

The program provides young adults with disabilities individualized social and life skills development in an integrated community setting. Each individual receives 5-15 hours a month of one-to-one individual social and life skills instruction and vocational skill development from trained staff Mentors.

The main focus of the Community Mentors is to increase social and life skills, so that individuals will gain greater independence in the community. Examples of social and life skills that are developed include, learning to utilize public transportation, using money for purchases, operating an ATM, refilling prescriptions at the pharmacy, volunteering, using the phone, food shopping, planning a meal, etc.

To vote, simply visit http://www.refresheverything.com/communitymentors.

For more information about UCP of Northern, Central and Southern New Jersey, please visit www.ucpncsnj.org.

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Through June 11: The International Disability Film Festival

The International Disability Film Festival is running through June 11.

AFI Silver is collaborating with VSA--the international organization on arts and disability--to present the International Disability Film Festival, which will include a wide selection of outstanding films by and about people with disabilities from all over the world. The film festival is part of the 2010 International VSA Festival, taking place in theaters, museums, cultural institutions and public spaces throughout the Washington metropolitan area, and bringing together more than 2,000 participants from around the globe.

Most recently, the Oscar-winning “Music by Prudence” was featured in The Washington Post: Health Section on June 8,. The main character in this 33-minute documentary is a woman named Prudence who lives in Zimbabwe. She was born with a condition called arthrogryposis that resulted in limited mobility. However, nothing has stopped her from living a life without limits – Prudence, who has an amazing voice, began an Afro-fusion band called Liyana with fellow musicians; all eight members have disabilities, and their talent and enthusiasm are impossible to ignore.

The documentary is just one film in the series. The lineup also features other documentaries, live-action and animated features by and about people with disabilities. To view a complete list of movies playing, please visit http://www.afi.com/silver/new/nowplaying/2010/v7i2/idff10.aspx.

For information about festival events, please visit the 2010 International VSA Festival website at http://www.kennedy-center.org/programs/festivals/09-10/vsa/.

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Wednesday, June 9, 2010

Announcements - June 9, 2010

UCP in the News

Affiliate Action Items, Updates & Events
Resources
  • PR News Conferences: Media Relations Next Practices Forum (Jun. 17, Washington, DC)
  • Alliance for Full Participation: Webinar: Nuts & Bolts: Service Innovations. Learn innovative approaches used by direct support workers, employment providers and state agencies to make employment first a reality in New Mexico. Speakers: Judith Stevens, Community Inclusion Team Staff Manager at the Developmental Disabilities Supports Division, New Mexico Department of Health and Maria Cordova, Adelante Development Center, Inc. in Albuquerque New Mexico and recipient of the ANCOR 2010 Direct Support Professional of the Year (Jun. 18, 1:00 - 2:00 p.m. ET)
  • NetAtlantic: Live Webinar: Make Your Emails Matter. 5 components of a successful email marketing strategy and how to increase relevance through segmentation and targeting. (Jun 24 at 2:00 p.m. ET)
  • The Arc of the United States: Seeking nominations for 2010 Research Matters! Award (Deadline: Jul. 1)
Advocacy, Disability, Fundraising & Web 2.0 News

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    Monday, June 7, 2010

    The Capitol Insider - Week of June 7, 2010

    Volume 15, Issue 22
    June 7, 2010

    Legislative Action Center Federal Disability Public Policy Calendar  Current Federal Bills  Federal Register Summary 2010 Disability Policy Seminar

    Action Alerts

    Targeted alert for constituents of the 62 Senators that voted for a bill that contained a provision for an extension of the increase in the federal share of Medicaid: Huge Medicaid Cuts are Still at Stake. Make sure your Senator(s) continue to support extending the increase in the federal share of Medicaid.

    Major Events Last Week

    Obama Administration

    The U.S. Department of State has named Judy Heumann as the Special Advisor for International Disability Rights. President Obama and Secretary of State Hillary Clinton pledged to create this position when they announced that the US would sign the Convention on the Rights of Persons with Disabilities. Ms. Heumann was the Assistant Secretary of the Office of Special Education and Rehabilitative Services (OSERS) in the US Department of Education during the Clinton administration. Most recently, she was the Director of the Department on Disability Services for the District of Columbia. She has a long history as a national and international leader in the disability rights movement.

    Major Events Ahead

    U. S. Congress

    The Congress returns to action after the one week Memorial Day recess. It will meet for four weeks until the beginning of the Independence Day recess. This time frame is seen as a crucial for the Congress to make progress on bills it intends to bring to completion before the November elections. Its priority agenda should include legislation to keep federal programs operating at the start of Fiscal Year 2011 which starts on October 1. Few, if any, Fiscal Year 2011 appropriations bills are likely to be signed into law before the fiscal year begins. Passing key bills will be a huge challenge for Members of Congress, especially in the Senate, who are caught between saving jobs and increasing the federal deficit.

    Medicaid

    The Senate is expected to take up a tax extenders bill this week. It is currently unclear which provisions, including the six month extension of the American Recovery and Reinvestment Act's temporary increase in the federal share of Medicaid spending (FMAP), will be in the legislation. The Senate Democratic Caucus meets on Tuesday to discuss these issues. Sixty votes will be needed to move the bill forward. Finding the 60 votes will be next to impossible unless the Senate adopts ways to pay for any new spending. Work on this bill is expected to take days, possibly spilling into next week.

    Education

    The Congress is being pressed to increase education spending by about $23 billion before the start of the school year this fall. This amount would prevent the anticipated layoffs of approximately 300,000 teachers during the school year. This spending increase is being sought as school administrators see the billions of education dollars authorized by the American Recovery and Reinvestment Act drying up early in 2011. As with emergency spending for Medicaid, getting the 60 Senate votes for this purpose will be next to impossible unless the added spending is offset with new revenues or cuts to other programs.

    FY 2011 Budget Resolution

    Neither House has decided to move forward on the FY 2011 Budget Resolution (BR). Action on the FY 2011 BR has been delayed for two months, primarily due to concerns from the House and Senate Democratic Majority that voting on such a measure in a difficult election year may prove politically unpopular since the federal deficit would likely rise from the next fiscal year's spending. Without a BR, House and Senate appropriators will have to proceed using a process called "deeming" the BR to have passed. That would then allow the appropriators to begin work on the FY 2011 appropriations bills.

    Card Check Legislation

    Bills to make it easier for employees to unionize are unlikely to be considered by this Congress. Months of informal negotiation have failed to temper strong opposition for the bill from business groups.


    Announcements

    Health Care Reform Resource


    Families USA has put together state by state information about health reform, focusing on the acute care aspects of the law.
    They are urging advocates to use this information to educate policy makers and the public about health reform. See: http://www.familiesusa.org/health-reform-2010/health-reform-helps-states.html.

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    Previous issues of the Capitol Insider may be viewed at www.UCP.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org

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    Information & Referral: Father's with Children of Special Needs

    Father's Day is coming up, and what better time than now to focus on the important role that fathers play in the lives of children with disabilities. Research has shown that fathers and mothers of children with disabilities have many of the same needs and concerns, but there can also be real differences in how they respond to their child's condition, what they do to cope and what they find helpful. A recent article also pointed out the differences between mothers and fathers in how they interact with their children.

    The Fathers Network has a mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities. The Web site contains information on advocating for your child, dealing with professionals, finding support for fathers, a bibliography and more.

    Does your Affiliate have any programs specifically for fathers?

    Additional Information:

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    Wednesday, June 2, 2010

    Announcements - June 2, 2010

    UCP in the News

    Affiliate Updates & Events
    Resources & Opportunities
    Advocacy, Disability, Fundraising & Web 2.0 News

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    Special Screening of "Including Samuel" Documentary Film at VSA Festival: Friday, June 11 in Washington, DC

    Friday, June 11, 5:30-7:30 p.m.
    Grand Hyatt Hotel, 1000 H Street NW, Washington, DC

    Filmmaker Dan Habib and international disability rights leader Victor Pineda are inviting people, families and friends to join them for a screening of the acclaimed documentary Including Samuel. Habib and Pineda will lead a post-film discussion about how filmmaking and digital media are essential educational and advocacy tools in promoting inclusive education around the world on Friday, June 11, 5:30-7:30 p.m. at the Grand Hyatt Hotel, 1000 H Street NW, Washington, DC.

    Additionally, Drew Goldsmith, a 13-year-old self-advocate, will premiere his video for an emerging National Youth Inclusion Campaign.

    Admission is free, but attendees MUST bring the invitation if not already registered for the VSA Festival. To download the invitation, please click on the photo at the top of this blog post, and download the PDF invitation.

    Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, chronicles the Habib family’s efforts to include Samuel, who has cerebral palsy, into every facet of their lives. The film honestly portrays his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionately photographed film that captures the cultural and systemic barriers to inclusion.

    To view the film trailer and for more information about the film, please visit www.includingsamuel.com. For more information on the 2010 VSA Festival, please visit www.vsafestival.org.

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    Tuesday, June 1, 2010

    The Capitol Insider - Week of May 31, 2010


    Volume 15, Issue 21
    June 1, 2010

    Legislative Action Center Federal Disability Public Policy Calendar  Current Federal Bills  Federal Register Summary 2010 Disability Policy Seminar

    Action Alerts

    None.

    Major Events Last Week

    FY 2010 Appropriations/Education

    The House action on the supplemental spending bill was stalled last week by disagreements about including fiscal relief for states to prevent massive layoffs of teachers. The scheduled May 27th House Appropriations Committee mark-up of the supplemental spending bill was cancelled. It will likely occur soon after the House returns from the Memorial Day recess. House Appropriations Committee Chair David Obey (D-WI) included $23 billion to prevent layoffs of as many as 300,000 teachers due to strained state and local budgets. Fiscally conservative Democrats and Republicans objected to adding the additional funding to the bill particularly since there were not corresponding cuts to offset the costs. The supplemental includes funding for the wars in Iraq and Afghanistan, veterans, victims of natural disasters and the oil spill. On May 27 the Senate passed its version of the bill which did not include the school money.

    Medicaid/Medicare/Housing

    On Friday, May 28 the House passed H. R. 4213, the American Workers, State, and Business Relief Act of 2010, by a vote of 215-204. The $113 billion measure extends unemployment insurance compensation, blocks cuts in doctors' Medicare payments, increases infrastructure funding, and retroactively extends tax code provisions that expired at the end of 2009. Conservative "Blue Dog" Democrats withheld support until at least some parts of the bill wouldn't add to the deficit. In the final compromise, Democratic leaders dropped two costly provisions---an extension of the increase in Medicaid federal medical assistance percentage (FMAP) to states and the COBRA health insurance subsidy. Fortunately, an important provision for the disability community remained in the House-passed bill: $1 billion for the National Affordable Housing Trust Fund to build and preserve 1.5 million units of affordable rental housing for individuals with extremely low incomes. The Senate vote on H.R. 4213 has not yet been scheduled. With floor time quickly running out this Congress, disability advocates are working to ensure that the Medicaid FMAP provision is included in other "must pass" bills. The Arc and UCP extend a sincere thank you to all advocates who called their representatives last week in support of the Medicaid FMAP provision.

    Civil Rights/ ADA/Olmstead

    The Justice Department announced it has filed briefs in three separate cases in Florida, Illinois and New Jersey as part of its continuing effort to enforce civil rights laws that require states to end discrimination against and unnecessary segregation of persons with disabilities. The Department's filings support two private lawsuits seeking relief in Florida and New Jersey, as well as a proposed statewide class action settlement in Illinois. The briefs allege that the three states are failing to comply with the Americans with Disabilities Act (ADA) and the Supreme Court's decision Olmstead decision. Last year, President Obama issued a proclamation launching the "Year of Community Living," and has directed the Administration to redouble enforcement efforts.

    Fiscal Commission

    The National Commission on Fiscal Responsibility and Reform met in Washington, DC last week. http://www.fiscalcommission.gov/. The Commission is designed to work in a bipartisan way to propose steps to address the nation's long-term debt, bring down the deficit, and ensure that the federal government returns to fiscal discipline. Advocates are monitoring the Commission's work closely and participating where possible since Social Security, Medicare, and Medicaid programs will be part of the commission's focus. Last week Commission members heard from economists from the University of Maryland and from the International Monetary Fund. The Commission also heard reports from its three working groups addressing discretionary spending, mandatory spending, and tax reform. The next meeting is scheduled for June 30 and will include an afternoon for individuals and organizations to make recommendations to the Commission. The Commission has not begun to publicly consider specific recommendations yet. In addition, the Commission is soliciting public comments on its Web site at http://www.fiscalcommission.gov.

    Major Events Ahead

    U.S. Congress

    The House and Senate are out of session from May 31 through June 4 in recognition of Memorial Day.

    Announcements

    Medicaid HCBS funding cuts

    A letter to the editor by UCP's President &CEO Stephen Bennett was published in The Wall Street Journal on May 28. The letter was in response to an article profiling several individuals with developmental disabilities who have been the significantly impacted by cuts made to home and community based services (HCBS). Read the letter to the editor at http://online.wsj.com/article/SB10001424052748704026204575266493469222392.html?KEYWORDS=stephen+bennett#articleTabs%3Darticle

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    Previous issues of the Capitol Insider may be viewed at www.UCP.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

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